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BRAINWAVE - THE IRISH EPILEPSY ASSOCIATION This is an excellent website for information, advice, etc EPILEPSY SCOTLAND http://www.epilepsyscotland.org.uk/ Epilepsy Scotland is working to overcome the ignorance and injustice faced by the 30,000 people with epilepsy throughout Scotland. They lobby policymakers for better services to meet local needs and they campaign against the stigma of epilepsy by raising awareness and informing public opinion. JOINT EPILEPSY COUNCIL http://www.jointepilepsycouncil.org.uk/ The Joint Epilepsy Council of the U.K. and Ireland (JEC) is an umbrella organisation which exists to represent the united voice of the voluntary sector and presents evidence based views on the need to improve services for people with epilepsy, their families, and carers in the UK and Ireland.THE EPILEPSY PROJECT So what is epilepsy? What is a seizure? Will I have seizures forever? You may have a lot of questions about epilepsy. This part of epilepsy.com will help you understand the basics, answer the most common questions, and empower you with the information you need to find a place for epilepsy in your life without turning it upside down. EPILEPSY AND PREGNANCY http://www.epilepsyandpregnancy.co.uk/ This is a Web Site for a specialist organisation which produces a UK Epilepsy and Pregnancy Register. This will allow easy access to help and support at home for women with epilepsy that are expecting / have already given birth. UNDERSTANDING EPILEPSY http://www.familydoctor.co.uk/
Select ‘Preview Books online’ in the top
left hand corner of the page then select ‘Epilepsy.’ CONTACT A FAMILY WALES http://www.cafamily.org.uk/inyourarea/wales/index.html
With the Children and
Young People’s Specialist Services Project, the Welsh Assembly Government aims
to address the specific needs of children and young people in Wales who access
specialised healthcare. We at Contact a Family Wales are working with the
Assembly to ensure that the project takes account of parents’ views. Alternatively, you can
write to Martin at the following address:- MATTHEW'S FRIENDS (Ketogenic Diet) http://www.matthewsfriends.org/ Please note that the Ketogenic Diet is not supported by all hospitals or our fieldworkers. NICE GUIDELINES http://www.nice.org.uk/Guidance/CG20 EXPERT PATIENT PROGRAMME WALES The Expert Patients Programme Wales (EPP) provides a range of self management courses and workshops for people living with long-term health conditions or for those who care for someone with a long term condition. The original chronic disease self-management course (CDSMC) was developed in the USA in the 1970's and is now run in the UK and many other countries around the world. In Wales, we run:
SKILL: NATIONAL BUREAU FOR STUDENTS WITH DISABILITIES
www.skill.org.uk then click on Skill Wales on the website Skill: National Bureau for Students with Disabilities is an independent charity working to promote opportunities for post-16 disabled people in reaching their full potential in Further Education, Higher Education and continuing education, training and employment. Skill Wales extents this mission to provide a Welsh focus and to address Wales specific issues through the provision of information, advice, consultancy, membership, networking, and participation in Welsh national policy development.
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